Welcome!
Thank you for visiting my website. Here you can find more about my journey with Toxic Epidermal Necrolysis (TEN), my books, and my work to raise awareness of this rare and life-threatening condition.
The journey from the moment my illness began to the moment I was finally able to put my experience into words took 10 years.
Therefore: Ten Years of TEN!
What started as a personal journey of survival became a journey of understanding, healing and sharing my story with others.
My story is now being shared in Dutch, Swedish and, from September 10, 2026, in English with the publication of An Inner Tornado – My Battle with Toxic Epidermal Necrolysis.
Thank you for being here. I hope my story can create awareness, offer understanding, and perhaps give hope to others on their own journey. 🤍

“A patient’s perspective on TEN, survival and the psychological aftermath of a life-changing illness.”
Stay tuned! More information will come shortly 🤩